The Ark

The Ark manages structured health and medical research data for human and animal studies, enabling storage and export of demographic, phenotypic, biospecimen, pedigree, consent, and correspondence records for downstream analysis.

Key Features:

• Core data types: Stores and organizes demographic details, phenotypic data, biospecimen records, and pedigree information.
• Study-generic configurability: Supports configurable study data models to represent study-specific variables and metadata.
• Participant management: Records and tracks participant consent status and correspondence linked to study subjects.
• Data export and reporting: Generates custom data exports and reports for downstream analysis and sharing of study data.

Scientific Applications:

• Clinical and observational studies: Manages comprehensive participant and specimen datasets for clinical trials and observational research involving human subjects and animal models.
• Genetic and pedigree research: Supports storage of phenotypic, biospecimen, and pedigree information for genetic analyses and family-based studies.

Methodology:

Configurable study data models record demographic, phenotypic, biospecimen, pedigree, consent, and correspondence data and support generation of custom data exports and reports.