HantaReg

HantaReg provides a multinational registry for standardized collection and centralized analysis of clinical and epidemiological data on hantavirus infections, including hemorrhagic fever with renal syndrome (HFRS) and hantavirus cardiopulmonary syndrome (HCPS).

Key Features:

• Multinational surveillance: Supports multinational research through centralized collection and analysis of hantavirus clinical and epidemiological data.
• Electronic case report forms (eCRFs): Implements eCRFs hosted via a GDPR-compliant platform (clinicalsurveys.net) for standardized data capture.
• Modular structure: Employs modular form design with conditional display logic to show or hide items based on case documentation (e.g., HFRS versus HCPS).
• Comprehensive data categories: Captures demographics, pre-existing diseases, clinical presentation, diagnostic and therapeutic approaches, and patient outcomes.
• Evidence-based guideline support: Enables analysis of diagnostic and treatment pathways to inform development of guidelines and scoring systems for patient risk stratification.

Scientific Applications:

• Clinical and epidemiological studies: Facilitates standardized multicenter data collection for observational and comparative research on hantavirus infections.
• International collaboration: Supports cross-border data aggregation to assess incidence, species distribution, and outbreak dynamics of hantaviruses.
• Guideline and risk score development: Provides datasets for deriving treatment recommendations, clinical scoring systems, and documentation of disease courses to improve patient management.

Methodology:

Data are collected via electronic case report forms hosted on a GDPR-compliant platform (clinicalsurveys.net) using modular conditional display logic and centrally aggregated for analysis.